Father Speaks Out
In early August of 1987, our oldest daughter Megan, not yet a year old, was slowly regaining consciousness after an eight day medically-induced coma. Each round of a curiously cyclical pattern of waking, stretching, yawning, quietly whining and then falling back asleep seemed to come a little bit closer to the last. Now in a bigger hospital, in a bigger town, another new neurologist described the affect of the three and a half hour seizure that preceded the coma as her brain being wiped clean just like a chalkboard. He went on to express the possibility that someday soon she would regain the skills and developmental milestones we’d soon realize she had lost. The hope contained in that thought slowly dissipated over the weeks and months to follow. Read more
Tennessee Mother Calls for Change
Thank you chairman Kelsey and committee members. My name is Sandy Bush and I am from Knoxville.
I am here because we need another option for people with epilepsy in our state. Epileptic seizures are so serious that they cause permanent brain damage and they kill. In fact, most people are unaware that epilepsy kills more people every year than breast cancer. My son Cameron, who is almost 3, is severely developmentally delayed because of the uncontrolled seizures that he has suffered for most of his life. Because seizures are so powerful, equally powerful medications are prescribed to control them. They come with dangerous side effects. Cameron has tried several medications that failed to work for him. Read more